I had a Cerebral Palsy review done. That's where they measure arms and legs to measure my range of movements, and see if I am still growing.
It happens every six months.
It's hard to hear that my muscles are getting tighter and that I have increased spasticity.
It's my reality, but it's so frustrating because of all the hours we spend on therapy. Mum does sneaky therapy on me all the time. If we are cuddling, she gets me sitting on my own; things like that.
And then this afternoon, we found out that despite us waiting for close to six months for me to have surgery, I haven't actually even been on a wait list. Mum has been trying to contact the hospital for ages, but they never got back to her. And so, we have to start our wait all over again!
I'm so lucky Mum stays on top of these things.
So... today was a frustrating day and a day were we really don't like cerebral palsy.