Look how beautifully open my hands and fingers are!
I haven't always been able to do that! I needed to learn to open my hands...
to relax the muscles and to reach out and touch things.
Therapy really does work!
I'm still sick... But still cheeky!
Look how beautifully open my hands and fingers are! I haven't always been able to do that! I needed to learn to open my hands... to relax the muscles and to reach out and touch things. Therapy really does work! Wow... I really was little! This was my first outfit, I was 2 months old when I wore it and it was too big! It's size 'tiny prem'. Here I am today, with the outfit lying on my chest!
And, Hamish the Cow is still here with me, too! Look how much I've grown! I love being thrown upside down!
I think it's so much fun - I never used to be able to do that because I would throw up ALL the time! This is a little trip down Memory Lane for us... But, for some of you, this might be the first time you've seen much of my premmie story. I was born nine weeks early, and had quite a few setbacks during that time. I had countless procedures and tests, including a lumbar puncture and every kind of scan available. I was treated for pneumonia and a range of infections and caused everyone a lot of worry... But, I was determined right from the start! These videos are photo-videos. They are a collection of photos, taken during my time in hospital as a premmie baby. The music is not our first choice, but copyright restrictions prevent us from choosing our own. I would love to have had Wes Carr's "Been a Long Time" and J Cole's "I'm Coming Home" as background music... they were both popular when I was getting ready to come home. These songs mean a lot to us, and they are actually very hard for Mum to listen to... too many emotions are linked to them. Some of the videos are on the 'long' side, so make a cuppa and settle in. Turn the volume down... play your favourite music instead. Almost all of the photos were taken on mobile phones. We'll create a photo-video for the cancer part of my life, too. Maybe we will create some fun ones, too! (To watch = Click on the 'play' arrow, then increase the screen size by clicking the box shape in the bottom right hand corner.)
It's so cool, at the moment...
If we cry in the night, Nanoo lets us sleep in her bed! I woke up and had cuddles and chuckles with Pokky and Charlotte had cuddles and blew raspberries with Nanoo. We love being spoiled! xx She hit me!! (but we love our shirts!)
Our friends went to Fiji - and they bought us back a very cool shirt each. Thanks so much! Big kisses xxx Wow!
Look what came in the mail! I got two bibs today from My Teething Baby... One of the bibs is for my sister, which is so cool! Two of the bibs are for me. The one that my Dexter Bear is wearing is made from surfboard material. When I was tiny, before I came home from the hospital, my Nanoo and her friends made some 'blankets' for the tiny beds for premmie babies in the NICU (to keep the beds nice and dark). There were about 100 blankets, and Mum kept one for me... it was the one made from the exact same surfboard material as this bib! That is amazing! Check out the My Teething Baby on facebook (they are getting a website together!)
Routine tests today - checking that my cancer is still dead!
I can't eat again, until its all done... probably after 3pm today! Mum isn't supposed to eat in the room with the fasting kids, either. I'll be so upset... I'll be screaming and I'll get really frustrated, but there's nothing Mum can do for me and I'm a bit too little to understand why I can't eat. We're in the car already and won't be home until after bed time! My sister is staying with Nanoo and Pokky. It might be a good day for boredom busters - not sure whether Mum will have much internet access or battery! Good luck, me! xx |
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