He lets us have gelato for lunch!
But shhh.... don't tell Mum!
I like it when Daddy is home.
He lets us have gelato for lunch! But shhh.... don't tell Mum! Mum and Dad let us stay up late, last night, and took us for a drive to Berry. We saw some very special Christmas lights. The Clarke family have made some amazing light displays - out of milk crates! They had music playing and a sausage sizzle. There was milk and candy canes. My sister kept stealing all the cupcakes! And, I got to eat a pink zooper dooper! They are raising money, for me! They are awesome, and we had lots of fun. Go check the lights out, and get lost in the maze at 'Dexter's castle'! My first Christmas lights, for 2014. Beautiful! I love Christmas lights. They are perfect for my vision! Dexter's Castle! Wow! My sister loved it in there. She found the kids-room-only tunnel. Dexter's Pirate Ship! So cool! There was an anchor, and life jackets, fishing reels, nets and a steering wheel. The mast is very cool... and Trevor had to climb it, to attach the sail! 35 Clarence Street, Berry... The lights look fantastic, and a huge effort was put in, to making this. Add this address to your Christmas Lights Must See Places. Check out my pink zooper dooper smiles! And, look at these two... thinking they are on the Titanic!
This afternoon, I was on the chair, in the waves. The chair pushes well on the sand, and in the shallow water. As the waves hit the beach wheelchair, the front wheels float off, and the back wheels roll forwards, with the wave. So, I pretty much feel the sensation of being lifted and carried by a wave! I was pretty quiet, at first, listening to the new sounds of the waves and surf, but I soon learned what was happening. I liked when they counted one, two, three... because when they said three, the wave was about to hit the chair, and carry me away! I don't think Mum will let me go out too deep, just yet! I waved my arms around, after every wave. I am a little small, for the seat, and have trouble keeping my body straight (because of the cerebral palsy), so we will probably get me some form of a harness. Today, we used a towel and a round cushion. I'm going to love this! And, my noisy sister got to run off some energy, too! **Look how straight my legs are! I'm doing so well. My muscles still cramp up and get very tight! I still cry when I am moved, but I'm being very brave and very strong. I only wear my brace at night.
The Kiama Independent wrote a newspaper article about me, my chair and One Fitness 24/7. Thanks, Kiama Independent! Read about the One Fitness Ice Bucket Challenge, where the money for this chair was raised! It was a cold day, and the icy water was even colder! Thank you! Meet One Fitness 24/7. Find One Fitness 24/7 on facebook Visit the One Fitness 24/7 website Find Doing it for Dexter on facebook Who is Dexter? Return to Home page Return to Blog I went to my first school dance tonight! I did the hoky poky, the macarena and the limbo! I liked seeing my teachers and friends. The music was loud, and I loved it. I did lots of dancing, and moved my arms around, so much! We had to dress up as what we want to be when we grow up... I want big muscles, like The Hulk! I'm doing much better, out of my brace. My muscles still tighten up, and I still cry most times I am moved, but I'm doing very well. The muscles get so tight, they can be easily felt, and everyone tries to massage the tightness away.
Check out what I got given today!! Huge thanks to Nichole and everyone at One Fitness 24/7! Now, I will be able to join my noisy sister at our beach. This is the very first time I have been on this beach. Before today, it was too hard... I can't be pushed in a pram and I can't lie on a blanket... I would get all sandy! Now, I can cruise up and down the water, and in and out of the waves, in my beach wheelchair! It's very cool! We will most likely get me a harness, to help me sit nice and straight in the chair, especially for when we take it into the small waves! I had to go to preschool today, and it stormed this afternoon, but I can't wait to get it in the water!. Thank you! So cool! The Kiama Independent wrote a newspaper article about me, my chair and One Fitness 24/7. Thanks, Kiama Independent! Read about the One Fitness Ice Bucket Challenge, where the money for this chair was raised! It was a cold day, and the icy water was even colder! Thank you! Meet One Fitness 24/7. Find One Fitness 24/7 on facebook
Visit the One Fitness 24/7 website Find Doing it for Dexter on facebook Who is Dexter? Meet... One Fitness 24/7 Return to Home page Return to Blog I'm a bit tired, today! I've been out of my brace for most of the day! (Actually, I ended up being out of my brace - all day!! It's on again now, and I am supposed to be sleeping.) It still hurts to be moved around, and I cry and scream every time someone moves me. But, my high-low chair has been adapted for me and my needs, so it's sort of like the brace. It keeps my knees in a parted position. We went to the local pool this morning, so I could stretch my muscles out. Hydrotherapy is going to be very important for my recovery, and for the rebuilding of my muscles. We got lots of looks, at the pool... because I cried and cried. I think people were thinking Mum and Dad were being very mean to me, making me swim, even while I was screaming. They probably would have liked it more if Mum and Dad got me out of the water, and took me home. What those people didn't know, was that the swimming was helping me. The swimming was good for me. I missed the water! I have been back in the bath, and that is very cool. I am happy there. (Once my muscles relax and I stop crying!) I can't wait until my muscles stop hurting. Kisses xx
Today was Kaisas baptism, so we all got dressed up to get a nice family photo. Kaisa is in a dress that is 62 years old! We have all worn it. Mum and her sisters have warn it. Their cousins have worn it! My Nanoo has worn it! And, Charlotte is wearing a dress that Nanoo made for Mum, when she was only little! This is probably the best shot we got! Family of Five
My Sister Knows - I have cerebral palsy Trying for Family Photos Kaisa Who is Dexter? Return to Home page Return to Blog It's been a big week! I've still got one more hydrotherapy session in Sydney, before I can go home. Mum tried to give me chocolate to keep me awake... It didn't work! I am home, now. I loved hearing my noisy sister, running through the house. I loved having everyone back together, again. I loved being able to hear everyone, and they all gave me lots and lots and lots of kisses.
The medical staff suggested I could be out of my brace, for about thirty minutes a day, until my muscles got a bit stronger. My leg has healed well... the fracture in my femor has healed nicely. My muscles ache. They hurt. The slightest movement is enough to send me into sobs and cries. I did spent about three hours out of my brace, this afternoon! That is an impressive effort! I spent some time lying on the ground, with my legs supported with a pillow. I spent some time sitting on people's laps... they all wanted to cuddle me. And, I had a bath! I cried as I was carried to the bath, and I cried when they put me in it. I hated being moved, and it really hurt... but, after a while, I started to kick and splash and play in the water. I love my baths. I'm in bed now. They have given me medicine, and I am fairly settled. My brace is back on, my legs are back in their familiar position. I have Hamish and my Cancer Bear, my dummy and the fan. Hopefully, I will have a good night's sleep, and not wake up too sore! We're going to try to go swimming lots of days, and I want to be strong enough to go to preschool on Monday. This is a post for Adam and Kylie. The Regal Regiment Fighting MND Copied from the Regal Regiment you tube channel:
A video to raise awareness and funds for research into MND. MND in 95% of cases, is sporadic! It does not discriminate! There is no known cure! Life expectancy is 2 - 5 Years! Progression in most cases is fast and aggressive! Join us make a difference so that no other family has to go through the heartache and pain that is MND! MND (motor neurone disease) is a neurological condition which robs people of the ability to walk, speak, move their limbs, swallow, eat & eventually breathe. In Australia, more than one person dies every day from MND & another is diagnosed. There is no effective treatment for stopping the progression of this disease so support & research is vital. Links Below! The Regal Regiment Fighting MND facebook page Donate via Every Day Hero Macquarie University MND Research facebook page My surgeon said my leg has healed nicely, and that I can slowly start to wean myself off my brace. That's good news. It's going to be a long process. It feels very strange to be out of the brace, and my legs hurt because my muscles are so sore. I will take the brace off a little longer, each day, until I can handle being without it. This makes me cry a lot. This video is just 20 seconds of what I do for at least half an hour, and I'm not even worked up yet! It will take a long time, before I am comfortable without the brace, and I have some very strong pain medications, to help with the pain. We should be home from hospital on Friday. **This video isn't very nice. It's hard to watch Dexter in pain. |
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