Although Cerebral Palsy is a permanent condition, as a person learns and grows and practices skills, more control over movement may be achieved. I’m so lucky! I was diagnosed very, very early. I have had a lot of therapy already, which is all very helpful! Mostly, I am happy to do my exercises, but… sometimes I don’t like them. At the moment, Mum does hip exercises with me every time she changes my nappy. She loves me so much. She has written “HIPS” on all my nappies, so when she puts one on me, she reads it and remembers our exercises. I love practicing moving, too. That helps a lot – that I am so determined.
Vision impairment is not uncommon in people with cerebral palsy. 1 in 10 children with cerebral palsy are blind. Mum and Dad were told not to say I “can’t see”. I will believe what they say and that might confuse me. Some days, I can see! (Even if it’s only for a short while) Instead, we talk about whether I’m having a good or a bad seeing day. I like my good seeing days. It means I can see my family.
No two individuals are affected in the same way ... some people may suffer minor motor skill problems, while others may be totally physically dependent. We’re not sure exactly where I will fit in this scale.
Cerebral Palsy Organisation - webpage