February
Started seeing the people at the Cerebral Palsy Alliance in Nowra
March
20th – Cortico vision impairment diagnosis
April
Easter Show – taken to Westmead Hospital – Emergency because of breathing issues. Lenice sat in the back of the car and blew air into his mouth
May
Turned 1
Paediatrician appointment and the detection of the enlarged liver
Ultrasound detected a ‘mass which needed treating’
June
First CT scan
Liver biopsy
Official hepatoblastoma diagnosis (liver cancer)
Lung biopsy
Insertion of central line for chemotherapy treatments
Time in the Children’s ICU – reintubated and resuscitated
Kidney tests, ECG and echo
Alphafetoprotein number was 120,000
First cycle of chemotherapy treatment – 4 days. In hospital for two weeks
July
Wollongong Hospital for an infection - In isolation and on antibiotics
Visited by the NICU nurses while in isolation
First blood/platelet transfusions
Potassium low, so supplement given
Clinic
2nd round of chemotherapy - 5 days in hospital
Alphafetoprotein number was 6550
Alphafetoprotein number was 4500
August
Platelet and blood transfusions
Tests on kidneys and hearing, echo
13th Fundraiser ‘Dollars for Dexter’
Tests/clinic
Weekly ‘bloods’ – flush the line, change dressing and test blood
Antibiotics
Round three of chemotherapy – 3 days in hospital
Alphafetoprotein number was 2400
September
Weekly bloods
Blood transfusion
Rash on face, head and stomach
Doubled anti-nausea medication
Alphafetoprotein number was 195
Alphafetoprotein number was 193
October
Bloods, clinic, CT scan
Surgery on liver – over 5 hours
CICU for one week – tube in, catheter, oxygen prongs, drain out, suppository/enema
Isolation for one night
Alphafetoprotein number was 100
November
Dr K
CT scan
Round five of chemotherapy and 3 days in hospital
Bloods and clinic
Temperature
Two platelet transfusions – bleeding gums, petechiae and bruising
Alphafetoprotein number was 14
December
Bloods and clinic
Round six of chemotherapy – 4 days
Platelet transfusion
Alphafetoprotein number was 6
January 2013
On Tuesday 8th - Alphafetoprotein number was 5
CT scan