They wondered how we feel about my Mygo Stander. We love it!
We trialed a range of standing frames. I was strapped in to each of them, and they were examined, to see how well they suited my needs. We looked at head support, torso support and room for the stander to adjust, as I grow. The Leckey MyGo Stander was the one we liked the most.
I used to spend time in my stander each morning, but I got so strong at standing in the frame that I needed more time in it. Now, I am in my stander in the evening, after dinner and a bath. It's perfect.
Mum is really good at strapping me into the stander now! She's super fast! She finds it quiet simple to put me in it. She puts my AFOs on and then my leg wraps. After that, she lies me in my stander, straps me in and then winds and tilts me into a standing position.
Mum really likes how supportive the stander is for me. After my femoral osteotomy procedure, one of my legs is about two centimetres shorter than the other one. This isn't a problem in my stander, because Mum placed a 'spacer' on to the foot rest and this leveled my leg height.
When we bought my Leckey MyGo stander, Mum and Dad opted to purchase a frame that was slightly too big for me, so I could grow into it. And, as I grow, the frame can grow with me. I will be able to use this frame for a couple more years.
A simple allen key system means changes to the frame can be made in a simple and time effective manner. This is important to us, because we are very busy.
Mum's favourite aspect of the MyGo stander would have to be the tray, with the inserted bowl. I was always a very serious little boy. When I was twelve months old, I was diagnosed with hepatoblastoma (liver cancer). This was at a time when I could have been learning to play, but I was very sick and didn't want to play with anything. I have cortical vision impairment, and I never really played with toys. Sometimes, I just couldn't see them. Sometimes, my cerebral palsy stopped me from being able to reach for toys, or to hold them.
But, now... when I am in my stander, I play!
The first time I was in my MyGo stander, Mum was washing the dishes and could hear the rattling of toys and the scratching of fingers on the tray top. She found my frame's bowl lifted from the frame tray and thrown on the floor, and she heard chuckling. She heard me learning to play!
Now, I am constantly throwing all my toys (and the bowl!) on to the floor.
Standing is important for me. I need to spend some time standing to help with my digestion and bowels. Standing helps with my bone strength and bone density. It lets me see the world from a different perspective; not just from the floor. Standing leaves my hands free to move. I'm much better at picking up things and holding them. My fingers are much stronger!
Mum loves my stander.
She said: "I have and will continue to recommend this standing frame."
Both of my sisters love my stander! The older sister is used to it now, but she still likes to climb on it, and spend time with me. My younger sister crawls straight to the standing frame, as soon as Mum starts tilting me in to position. My older sister has the job of collecting my toys and the bowl, whenever I throw it to the floor! If I do it too many times, she stops picking things up! At the moment, we are renovating my house, making it more accessible for me when I get my first wheelchair. Last weekend, there was a lot of excavation happening at the house. I was watching it, in my standing frame. |
We really like this standing frame.