I finally got rid of my poo!
My tummy feels better.
Mum and Dad had to go home. The sisters need them for the afternoon. I was sad when they left, even though I was holding Aunty Carol’s hand. I’m not letting her go until Mum and Dad come back.
I finally got rid of my poo! My tummy feels better. Surgery update:
I slept pretty well last night. I’m still having trouble with my poo. I’ve sat in my wheelchair and I sat in a toilet chair. It still hurts but I am being very brave. Good luck, Aunty Carol! #DextersReality #cerebralpalsy Surgery update: Today started good, then I needed to poo... but I couldn’t... I have been having pain episodes since 9am, with the last one lasting over 2 hours. I’ve been having spasms that come in waves every 20-30 seconds. I have had medicine to help me poo, but it hasn’t worked. I’m exhausted. My eyes, nose and mouth have swollen because my body can’t work out what’s going on. Aunty Carol is here with Mum and Dad. Tomorrow, Mum and Dad have to go home. My noisy sister is in her first singing concert. Aunty Carol will stay with me, so we need to get this sorted tonight. I will be ok, but tonight, we are all tired. Today, CP and hip surgery suck! My face was swollen and nothing made me feel better. I cried so much I was losing my voice.
We hope tomorrow is better. I told Mum good luck getting sleep!
I was awake a lot last night - some pain and just being uncomfortable in the brace. It’s really hot on my back and that makes it hard to sleep. Then, I woke Mum early and wanted food. Lucky she had kept some fruit and cake from my dinner! Now it’s time for my second breakfast. #DextersReality #cerebralpalsy I’m on a ward! I’m out of the ICU. That means Mum and Dad will take turns sleeping next to me. Good luck to Mum getting sleep tonight! I tolerated about an hour of sitting in my wheelchair today, without much pain relief! That’s a great start! #DextersReality #cerebralpalsy Dad tried to make me smile, but I was still grumpy!
Today has been much better and I have been much more chilled.
It’s two days since my surgery. My medication has been decreased and I have even been able to eat some small amounts (even though I vomited all of my lime mousse lunch!). I’ve even been able to sit up for a bit and hopefully tomorrow I’ll get to sit in my wheelchair for a bit (once it’s been modified to fit me!). I’m still in the ICU, but only because there isn’t a bed on the ward. That means I get watched closely and Mum and Dad get to have a sleep in a bed! I’m enjoying a movie now! #cerebralpalsy #Dextersreality I’ve had a much better night and my pain medication has finally been sorted!
My temperature has come down, but I do have a small amount of oxygen support! I don’t want to smile, because I’m cranky and getting hangry too! Hopefully I’ll be on the ward later today. Once I am out of the ICU, Mum and Dad will take turns sleeping on the ward with me. Thanks for all of the kind messages! X Honestly, today hasn’t been the greatest of days. My epidural wasn’t working and so I was in pain most of the night. The doctors and nurses have spent the day trying to work out what is the best combination of pain relief for me. I don’t like being moved position, but need to be, so I don’t get pressure sores. My temperature is very high. I sat up for about 30 minutes and managed to eat a couple of spoonfuls, but that’s all. This photo isn’t set up - it’s my parents struggling with memories of last time I had this surgery, it’s them feeling helpless because they can’t take my pain away for me, it’s their hearts breaking because it’s not fair. It’s been a long day. They are exhausted. I’ll be in ICU again tonight, so hopefully they will sleep. I’ll be ok - but for now, CP sucks. We will post more updates when we can. You can look at the Love Dexter Facebook or instagram pages for faster updates.
#cerebralpalsy #pain #ptsd Thanks for all the well wishes and messages of support today, it’s very much appreciated. After 5 and a half hours (anticipated 3-4 hours), Dexter has been taken to the ICU for close monitoring of his pain relief. They were unable to perform the full surgery because of some complications, but we haven’t had a chance to speak with his surgeon yet to find out the full meaning of that! He is in pain, but is breathing on his own and his levels all look ok. His brace is on and looks huge. He will be super cranky when he wakes up, but we have promised him loads of chocolates and ice cream! He is in good hands with the nurses in the ICU. On Sunday, Kate Vickery took photos of our family. She’s amazing. She captures the love and the laughter, the craziness and the gentleness. And, she sent the photos to us early this morning, so we would have something beautiful to help us through the hardest parts of the surgery. Go to Kate Vickery Photography on Facebook to see more photos. Give her some love from us. Waiting while your child is in surgery isn’t easy. We are lucky we have each other!
X More tomorrow. Smile! 😁
Today was my last day as a year one student! Mum told me to smile for the camera. I’ve been practicing! I’m pretty good at smiling now! 😁😁 I had such a fun day today; my teacher, aide and class made it so special for me. (I miss our class party day because of my surgery. It’s tomorrow morning.) 💜💜 I’ve had a great year at school! My surgery is set for tomorrow morning. We will share updates when we can. #cerebralpalsy #speechless #wheelchair #epilepsy #surgery |
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