Just when we were getting our head around Dexter's cerebral palsy 'spastic quadriplegia' diagnosis, we now have a new term being thrown around - 'dystonic quadriplegia'.
Just once it would be nice to fully understand what is going on in our lives!
We had a day of scheduled appointments and discussions with specialists today.
This is pretty standard for premmie kids, and more necessary when its kids like Dexter.
Dexter's new diagnosis is not so much a 'change' as an updated assessment. Lenice and Andrew were in the hospital all day today, they got bombarded with details and assessments, things to watch out for and likely scenarios.
It was a huge day for them all. Luckily, the kids are patient enough to spend another day in hospital.
Strangely enough, the updated assessment is like another punch in the guts. Dexter is the same kid he was yesterday, he just has a new diagnosis. Still... it hurts.
We haven't gotten our heads around the new cerebral palsy diagnosis yet, or what that means. But, when we get our heads around it, we'll share our knowledge with you.
Today doesn't really change anything, it's just been an exhausting day (well exhausting couple of years really!) and it makes us question a lot of the movements he does. It's not going to change the therapies he is getting and we will still be pushing him to be the best he can be.
It's just another name to get our heads around!
Thanks for listening!
(Lots of support was showered on Dexter's facebook page tonight. His facebook family are incredible in the way they have taken on Dexter as their own, and jump up to support and love him and his family. Thank you everyone. xx)