I had a seizure really early this morning. It didn’t last long, but it made me super tired today. My seizures are changing, we don’t really know why they are classified as now and we still don’t know my triggers. Epilepsy is a scary world.
To my Mum...
I am strong, because of you.
I can do so much more than people said I would, because of you.
I believe I can, because of you.
I'm determined (and stubborn), because of you... And cheeky because of you (and Dad!)
I am loved.
This cerebral palsy business never gets easy. Every. Single. Day. Is. Tough.
You are an amazing mum.
I'm so lucky I get to call you mine!
'Mum!' is one of my best words - I call it, you always listen.
'I love you' is too tricky for my mouth to say, but I say it with my heart; every single day.
We love you!
The hospital was very quiet and even though mum takes me on my own, dad wouldn’t have been allowed to come today. They have strict restrictions and testing in place.
Botox is important for me, especially after all the surgery. It’s a long, boring day and I have to fast, which makes it even harder! Today though, mum made sure I got my school work done, which made the day go a bit faster.
Today we found out that I have to go and visit with my surgeon again about my left foot and hip positions.
Mum never likes these days.
It was fun, but it was hard.
Mum did a good job - as good as she could given the circumstances! It’s not easy having to do the job of 4 people and keep everything else going...
We have been lucky that we have been able to go back to school more the last couple of weeks - mum was lucky and has picked up more work.
But, it’s still a bit weird to be going back full time. My little sister is struggling - just like she did when this all started. My middle sister is nervous.
There are lots of mixed emotions in the house at the moment.
So this afternoon, we spent time together - well sort of! We went to the Blowhole to see the big waves. It was super windy, so mum got us out of the car one by one, so she could hold on to us! Dad thought it was funny when the wind blew my wheelchair! My little sister had to be held in place and my middle sister almost flew into mums arms! That was fun!
Dexter has a lot to say and no easy way to say it. Dexter is trialing out this new communication device with his KidzWish Speech Pathologist and it is hoped the NDIS will fund this important communication tool in the future. Dexter is only 9 years old and he operates this entirely through eye gaze. Amazing right?
The work that our therapist do is incredible but the commitment and dedication that Dexter and all our KidzWish Kids have is truly remarkable. Keep up the great work Dexter!