But I liked it, because I got to spend all day with just Mum!
I had my annual cerebral palsy review. We meet with a range of doctors and specialists and they assess my progress and look for any areas of concern.
It's a hard day, and previously, it has also brought sad news or another problem to consider.
Often, people judge me on just a quick look at me and from what they have read about me. Often, Mum has to 'fight' for me... She has to make sure they see me, and not my level 4-5 quadriplegic cerebral palsy classification.
Mum has to emotionally prepare herself for these days. There are also a lot of memories that resurface, whenever we go to the hospital. These memories resurface for me, too. Mum knows that. She sees me get still and sees me thinking. She recognises that I am getting worried. When she tells me we are not staying overnight at the hospital... that I will be allowed to go home, she can see me start to relax.
Yesterday was a pretty good 'review' day. Mum only cried on the drive to Sydney.
The doctor said there are a few things we have to watch. My hamstrings are tight and my hand is turning in a bit too much, but otherwise they were pretty happy with me and liked how cheeky and chatty I was!
They did say I'm too skinny, so we have to work on that. I love food, but the doctors don't think I eat enough and if they keep thinking that, then they will try and make me eat through a tube... We don't want that. When I have been on a tube before, after surgeries, I have had to remember how to eat again. It's easy for my muscles to forget what they have to do! We don't want me to forget how to chew and swallow! If that happens... I can't eat cheesecake!
Thanks for everyone's well wishes and thoughts, yesterday. It means a lot.
Mum was Crying in the Ball Pit
What a Dollar means to Dexter
When Wheelchair Stops Being a Dirty Word
About the Sisters
Dexter's First Month
Dexter's Cerebral Palsy
Who is Dexter?
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