Or, you can save some dollars, and get one for a few hundred dollars.
So, why does my toilet cost over $6000?
Life with cerebral palsy is an endless search for money...
money to pay for things I need.
Every piece of equipment we look at costs thousands of dollars!
It's awful, to hear the cost of equipment, and know it's just not affordable.
I had a trial on a few toilets, today.
We're looking to get me one, as soon as we can.
It's our next big piece of equipment.
Here I am, trialing one:
Especially when we have already spent over $20,000 in the last year, on equipment for me. Having cerebral palsy is hard on the wallet!
Some people are surprised that we want a toilet, but I can use one!
I don't have words, but my family can tell when I need to do a poo (so embarrassing!). Before my surgery, I was using the real toilet, every night.
So... why do we need a toilet for me?
Mum had to cuddle the toilet, leaning over and holding me, because I can't sit there by myself. I need support.
Her face is very close to the bowl, and her back suffers.
Here's an older photo of me, using the house toilet:
And, I could sit in the lounge room, while I was on the toilet seat! How cool would that be!? Toilet and TV!
These seats can be placed over the toilet bowl, or they can be used as a stand alone toilet. They can also be used as a shower seat... but our bathroom is too small and we will not be able to fit any of these toilet seats in our bathroom.
We don't think we have the money to buy one of these ourselves, so we will most likely be applying for funding.
We're not sharing this in search of pity. And, we're not asking for money.
(But, if anyone knows anyone with a million billion dollars... I'd love to meet them!)
We sometimes 'forget' I was a premature baby, because I am so big and grown up now.
We sometimes 'forget' I had cancer, because my scars are healed and my hair has grown back.
But, we can never forget I have severe cerebral palsy.
If we're going to share my journey with cerebral palsy, my cortical vision impairment, cancer and premature birth, we have to share it all. And, applying for funding, and saving up for expensive equipment is a huge part of life with severe cerebral palsy.
(**We never really 'forget'... but the worst memories are no longer at the front of our minds.)
We will let you know how we go with the toilet seat.
Today was just another reminder that special needs equipment is frightfully expensive.