Here's what Mum wrote:
A week ago today, our world once again turned upside down.
After coming back from our first day away from him, we were informed the doctor wanted to have a chat with us. We were taken into a special room with two doctors and a nurse. We were sat down and the doctor attempted small talk. Our nerves were frayed and tension was high.
Dexter had had a routine head ultrasound on his four week birthday, just checking for any abnormalities or concerns. Unfortunately, the doctor advised us that they had, in fact, found something in the white matter of his brain.
He called it Periventricular Leukomalacia, or PVL, or in more simple terms... brain damage.
When he said those two words, our world stopped. Thoughts, questions, anger, blame, guilt... all rushed through our minds, with the biggest, unanswerable one being: Why?
Four years later,... we've been through so much together. We've had incredible lows and gut-wrenching heartbreaks. But, there has always been love.
Always.
So. Much. Love.
I know they feel heartbreak, but they continue to chase the rainbows and sliver linings. They continue to try, and they celebrate every little achievement.
And so, I continue to try. I'm proud and determined.
And I love them.
So Much.
My Birth
They Want Octopus Arms
Little Fingers Reaching
Mum. Love Her
Time With Dad
But, Where Can Dad Go?
I Didn’t Tell Dad I Love Him
Dexter's 2013
Dexter's First Month
Dexter's Vision
Dexter's Cerebral Palsy
Dexter's Cancer
Who is Dexter?
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