Meet my little sister! Charlotte Lorena. She was born today at 3.15pm. She weighed 3.17kg and is 49cm long. She was 4 weeks early, but is doing well and should be able to sleep with mum tonight! AND... She has red hair! It was quiet at my house this morning. When I woke up, only Aunty Carol was with me. I have had so many visits and so many visitors over Christmas, that I was very tired and I slept most of the morning. I spent the afternoon dancing (on the mat)! I loved the songs on the radio and had a great afternoon. I'm a groovy dancer, too! Dad came home after I was already in bed. He told me that I am a big brother now! I have a little sister! xx I've had such a great time with Nanoo and Pokky visiting. I've loved their cuddles and how much they have spoilt me! I'm going to miss them when they go, but will see them in a couple of weeks, when Koko comes along! January
February Started seeing the people at the Cerebral Palsy Alliance in Nowra March 20th – Cortico vision impairment diagnosis April Easter Show – taken to Westmead Hospital – Emergency because of breathing issues. Lenice sat in the back of the car and blew air into his mouth May Turned 1 Paediatrician appointment and the detection of the enlarged liver Ultrasound detected a ‘mass which needed treating’ June First CT scan Liver biopsy Official hepatoblastoma diagnosis (liver cancer) Lung biopsy Insertion of central line for chemotherapy treatments Time in the Children’s ICU – reintubated and resuscitated Kidney tests, ECG and echo Alphafetoprotein number was 120,000 First cycle of chemotherapy treatment – 4 days. In hospital for two weeks July Wollongong Hospital for an infection - In isolation and on antibiotics Visited by the NICU nurses while in isolation First blood/platelet transfusions Potassium low, so supplement given Clinic 2nd round of chemotherapy - 5 days in hospital Alphafetoprotein number was 6550 Alphafetoprotein number was 4500 August Platelet and blood transfusions Tests on kidneys and hearing, echo 13th Fundraiser ‘Dollars for Dexter’ Tests/clinic Weekly ‘bloods’ – flush the line, change dressing and test blood Antibiotics Round three of chemotherapy – 3 days in hospital Alphafetoprotein number was 2400 September Weekly bloods Blood transfusion Rash on face, head and stomach Doubled anti-nausea medication Alphafetoprotein number was 195 Alphafetoprotein number was 193 October Bloods, clinic, CT scan Surgery on liver – over 5 hours CICU for one week – tube in, catheter, oxygen prongs, drain out, suppository/enema Isolation for one night Alphafetoprotein number was 100 November Dr K CT scan Round five of chemotherapy and 3 days in hospital Bloods and clinic Temperature Two platelet transfusions – bleeding gums, petechiae and bruising Alphafetoprotein number was 14 December Bloods and clinic Round six of chemotherapy – 4 days Platelet transfusion Alphafetoprotein number was 6 January 2013 On Tuesday 8th - Alphafetoprotein number was 5 CT scan |
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