Love Dexter
  • Home
  • Blog
  • Prematurity
    • My Birth
    • My First Month
  • Cancer
    • Finding Out & Starting Treatment
    • Chemotherapy
    • Surgeries
    • Platelets
    • Hepatoblastoma
  • Cerebral Palsy
    • Brain Damage - Finding Out
    • Learning to Crawl
    • Learning to Eat
    • Learning to Sit
    • Learning to Stand
    • Learning to Walk
    • Conductive Education
    • Hip Dysplasia
    • What is Cerebral Palsy
    • Ode to Can
  • Cortical Vision CVI
    • Periventricular Leukomalacia
  • Wish List
  • Services
    • Premature Birth
    • Cerebral Palsy
    • Cortical Vision Impairment
    • Childhood Cancer
  • Doing it for Dexter
  • Help
    • Thanks
  • Contact
  • $29K for Charity
    • Camp Quality
    • Cancer Council
  • Wish List

#IceBucketChallenge 

8/28/2014

0 Comments

 
For the last few years, we have worked hard at raising awareness of cerebral palsy, cortical vision impairment and childhood cancer, especially hepatoblastoma.
We figure, the more awareness we raise, the more likely it is that people will understand Dexter and his disabilities... And, the more acceptance and understanding there is, the easier and more inclusive his life will be.
Raising awareness is not easy.
We work hard at it.
We've also worked really hard at fundraising. 
So far, we have raised $25,000 on behalf of Dexter. 
We have plans to raise more... I think it is something we will always do. 
We've seen just how much of a difference fundraising can make for people. 
We've been the benefactors of several fundraising events, for Dexter, which have allowed us to provide him with vital equipment we would otherwise have had to go without.

And so... the #icebucketchallenge... 
There will be an #IceBucketChallenge held for Dexter!

The #icebucketchallenge idea has raised so much money, and has lead to the words Motor Neurone Disease being spoken again, and again, and again. 
The Australian Motor Neurone Disease website claims over $700,000 has been raised, from 14,000 supporters - because of the #icebucketchallenge. 
And, the #icebucketchallenge has only been in Australia for two weeks!
The #IceBucketChallenge rules
1. Fill a bucket (or larger container) with water and ice
2. Tip it over your head
3. Challenge three other people to take the Ice Bucket Challenge within 48 hours
4. If nominees don't take the Ice Bucket Challenge within 48 hours they make a donatation to an MND charity.

Of course you can take the challenge AND make a donation and ask the people you nominate to do the same! 


Picture
So, a few Motor Neurone Disease facts:
  • MND is a progressive, terminal neurological disease
  • There is no known cure and no effective treatment for MND 
  • Each day in Australia two people die from MND 
  • Each day in Australia two people are diagnosed with MND 
  • People with MND progressively lose the use of their limbs and ability to speak, swallow and breathe, whilst their mind and senses usually remain intact
  • Average life expectancy is 27 months 
  • An estimated 1,900 people have MND in Australia 
  • For every person diagnosed with MND it is estimated that a further 14 members of their family and their friends will live with the effect of MND forever 
In our area, there are a few people with Motor Neurone Disease. 
One family has had to watch two family members pass away from MND, aged 55 and 57. A third member of the family has also been diagnosed with MND, and he is in his early thirties.
They have started a facebook page - The Regal Regiments Fighters. 
(Visit their page, give them a like and tell them Dexter sent you.)
Picture
We're happy to say, the Kiama Independent and the Lake Times Staff have decided to complete the #icebucketchallenge and they are doing it in honour of our local family who are all too familiar with MND. Adam has Motor Neurone Disease, and he will be one of the people pouring icy water over the newspaper staff. 
If you want to join in the fun, it will be at the Kiama Surf Beach northern carpark, at 4pm this Friday.
Well done, Kiama Independent and Lake Times!
Picture

We're also very happy to say, the trainers and staff at One Fitness 24/7 are also completing an #icebucketchallenge.
They are #DoingitforDexter and they will be throwing ice over their heads on Sunday the 31st of August, at 5pm, at the Sebel. 

Picture
The trainers at One Fitness 24/7 are raising money for Dexter.
The trainers are accepting bids, to see who will be the people to dump the buckets of icy water over them. They are also accepting donations, and some trainers are donating additional money for Dexter. We've not met the trainers, yet, but will do our best to get Dexter there for their #icebucketchallenge.
Picture
We'll be sure to share some photos!

MND Australia on Twitter
MND Australia Website
Find The Regal Regiment Fighting MND on facebook
Find One Fitness 24/7 on facebook
Visit the One Fitness 24/7 website
Return to Home page
Return to Blog
0 Comments



Leave a Reply.

    Dexter's Flying Fox Fun
    Picture
    Popular Posts
    I'm a Kindy Kid!
    Would you like some cake?
    We Nearly Lost Him
    Equal Love
    When I Was Tiny
    See The Cancer?
    I Just Want to be a Mum
    Who is Dexter?
    Learning to See
    And then, they whispered about me

    Dexter's Comm. Bank account details are:
    Dexter Heffernan
    BSB #  062562
    Acc # 10234461
    Extra therapies for Dexter. Thank you xxx
    Our Charity Fundraising:
    #DEXTERSMATES for Camp Quality 
    $11,595 raised
    Relay for Life
    We raised
     $20,967.60

    Others $2630
    Total raised for charity:
    $35,192.60
    Dexter's You Tube
    Surfing
    Cancer in Photos
    Beach Dash
    Stand Up Paddle
    Premmie
    First Month in Photos
    Dexter's You Tube
    Books & characters with disabilities here

    Find a Beach Wheelchair near you

    Buy a Yabby beach wheelchair here.
    Picture
    "I am tired, I am having a bad patch and I am unsure if I want to scream, get drunk or most likely just pull myself together and get on with it."  Kelly Dugan
    Picture
    Australian accessible toilets mapped  here.

    RSS Feed

    Tweets by @LoveDexter3

    Archives

    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    July 2018
    June 2018
    May 2018
    April 2018
    March 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    June 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    August 2012
    July 2012
    June 2012
    September 2011
    August 2011
    July 2011
    June 2011
    May 2011
    February 2011

Powered by Create your own unique website with customizable templates.