My epidural wasn’t working and so I was in pain most of the night.
The doctors and nurses have spent the day trying to work out what is the best combination of pain relief for me.
I don’t like being moved position, but need to be, so I don’t get pressure sores.
My temperature is very high.
I sat up for about 30 minutes and managed to eat a couple of spoonfuls, but that’s all.
This photo isn’t set up - it’s my parents struggling with memories of last time I had this surgery, it’s them feeling helpless because they can’t take my pain away for me, it’s their hearts breaking because it’s not fair.
It’s been a long day. They are exhausted. I’ll be in ICU again tonight, so hopefully they will sleep.
I’ll be ok - but for now, CP sucks.
#cerebralpalsy #pain #ptsd